By NatashaT1994
2 years ago

Epilepsy (My Story) - Part 5 - Update

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Part 1: https://tuetego.net/article/12543

Part 2: https://tuetego.net/article/12670

Part 3: https://tuetego.net/article/14461

Part 4: https://tuetego.net/article/15434


So last night (May 29th 2017) I had a bunch of half-seizures because I forgot to take my evening medicine. I heard my alarm go off on my phone and I switched it off and 5 minutes later I released I forgot to do something but I couldn't think what it was. First I thought I left the Curry in the oven too long so I went to the kitchen but the timer was still on and then I walked back to the bedroom and it was still bugging me so I walked back to the kitchen then I headed back to the bedroom but stopped in front of the living room door and my partner saw me just standing there staring into space.

He noticed that something was wrong with me and he told me to sit down and he spoke to me asking what was wrong and I started crying and saying that "I forgot to do something but I can't remember what" then that's when I started taking my half seizures. So he walked me to the bedroom and sat next too me and I was still crying and then it occurred to me that I had forgotten my medicine. It was about 10 minutes later when I took my medicine and I was still so panicky and I stressed myself out that I took more half-seizures.

I can remember that I sort of lost my vision. I was lying on my bed and my sight was just white mist with lines moving about. My head felt like it was on one of those rides that go up and then it goes down really fast making you scream. The inside of my head felt like that. My boyfriend was trying to calm me down and tell me too sleep. I just couldn't. Eventually I did fall asleep. My half-seizures felt like it lasted for ever but it was only like 20 minutes or so.

My boyfriend started getting real bad pain in his chest because he was worrying so much. When I started getting my vision back it looked like my boyfriend had been crying because his eyes were all red but he says he was just real tired (he was up for 24 hours nearly. Think it was 22 hours.)

This morning nearly afternoon he told me that I forgot who he was because I asked him who he was and he said I told him to "Go away." I feel so bad for my bf he only 20 years old and he has to put up with so much by himself. He really is my hero. Honestly I am so lucky to have him in my life. He may be strict with some things but it's only cause he cares.
2 years
graciana I hope you feel better now....
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Flutterbydee Thank you for writing these articles Natasha. I have learnt so much from them. Maybe you could get one of those vibrating watches but I guess you could switch that off too like your phone app :( Keep safe, Natasha.
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bee Sorry to hear that. I hope you and your BF are feeling better now x
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NatashaT1994 Thank you for your concerns and yes feeling much better and my bf chest pains have gone away now.
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LiaF7 Life teaches us. Forgetting medication is a risk you can't take. So the scare will give you strength. Knew a lady that had an absolutely normal life on medication. Take care and be happy :) You have so many beautiful years of happiness in front of you. :)
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fifileigh forgetting to take medicine for epilepsy could lead to death. i have heard stories of many people who got a seizure and died, which includes a 15-year-old boy. His father took him off medication, and he died of an epileptic seizure. I also heard that Ernest Hemingway's granddaughter, Margeaux, who was a model, died of an epileptic seizure at 40.
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NatashaT1994 It's amazing what only a few minutes later can do.
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luluarte I have a family member with epilepsy and I was already seeing complicated episodes
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