By NatashaT1994
3 years ago

Epilepsy (My Story Part 2)

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So I already explained the beginning of my new life of being Epileptic in Part 1.

Part 1: https://tuetego.net/article/12543

Anyway so after I became Epileptic I soon after took a seizure in Primary school in music class.
Not so bad. I didn't hurt myself.

Years on didn't really get better. I weirdly only took them at home instead of public. I think I've only taken 3 or 4 seizures in the public eye.

One of my worst was in 2013. I had to miss college because I was in the shower and I took a seizure and fell out the bath (because the shower was attached to the wall). I ended up with half a swollen face and a hole just above my left side of my mouth and every time I moved my mouth (speaking ect) blood would squirt out. My phone phoned for an ambulance because i thad been one of my worst but they wouldn't send one out. They would only look at me/examine me if my mum drove to the hospital. At the time she didn't have a car. The next day my face wasn't so swollen and my mum managed to get me to A&E and my then at the time friend met me there and he saw how swollen my face was and I told him that it was much worse yesterday.

In 2013 which I didn't know was possible, I don't know how or why but I started taking seizures in my sleep. It scared my mum because she didn't know that was possible either.

About 2014/2015 I was on the bus to college, well I thought I was, I got to the top of the stairs cause I always sit at the top of the bus and as soon as I got to the top....Guess what? I took a seizure and fell to the bottom of the stairs. (Poor driver) There was these junkies on the bus and I was informed afterwards that they were laughing quietly until they saw I was lying on my own blood (not alot only from the nose). I came round and i was in an ambulance. My mum was phoned and she came to the ambulance to speak to them and well I was sort of capable of walking home I mean the ambulance was basically 1 minute walk from my house but they drove me home even though it wasn't needed. Sweet.

2016 my seizures have calmed down a lot and I can go about 3 months without taking one. So that's good but now when I take a seizure I refuse to breath. My mum go ta fright when she first saw this because my face went completely blue. Also it scared my boyfriend when that happened one night because I was going blue in the face so he had to force open my mouth.

About my medicine:

I take Keppra 750mg twice a day and I take Lamotrigne 250mg twice a day. Both at 06:30 am and 6:30pm

That is my story so far but will be doing a part 3 on like what I can and cannot do anymore. Some will be obvious and the tests I've had.
3 years
ze2000 Why wouldn't they send an ambulance? What was the excuse?
3 years
3 years
NatashaT1994 They didn't really think it was serious enough. As far as I understood what my mum told me. She was angry though.
3 years
3 years
Borderline it's upsetting
3 years
3 years
HappyLady I am glad your seizures are calming now. My heart used to ache for the children I worked with. You really have had a hard time with a condition that is often misunderstood.
3 years
3 years
NatashaT1994 @HappyLady It's annoying to explain it to some people. I nearly shouted at my friend in college because my add on medicine makes me tired and sometimes I can't handle it so I go back to bed. According to her my tiredness isn't an excuse to stay of college. But if I am tired I can take a seizure.
3 years